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On April 25, the inaugural meeting of another patient charity organization in the field of rare blood diseases in China-"Casterman House" was held in Beijing.
Castleman disease is a relatively rare lymphoproliferative disease, also known as angiofollicular lymphadenopathy or giant lymphadenopathy, with a global incidence of only about 2 per 100,000 people.
Professor Li Jian, chief physician of the Department of Hematology, Peking Union Medical College Hospital, pointed out: "The etiology and pathogenesis of Castleman's disease have not been fully elucidated.
"As a highly heterogeneous disease, the clinical and pathological manifestations of Castleman's disease are diverse.
From front-end diagnosis to long-term treatment and disease management, how to help patients get out of the plight of lack of medicine and medicine is another important issue facing all parties.
According to Fan Jing from JD Health and Medicine Division, JD Health’s “Rare Disease Care Fund” can provide patients applying for assistance with a maximum of 50,000 yuan per year for public welfare assistance to alleviate the economic burden caused by treatment.