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    Home > Active Ingredient News > Drugs Articles > Rare disease patients to see a doctor difficult to see expensive how to crack

    Rare disease patients to see a doctor difficult to see expensive how to crack

    • Last Update: 2021-03-01
    • Source: Internet
    • Author: User
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    's new journey is on! In October this year, the Fifth Plenary Session of the 19th Central Committee of the Communist Party of China (CPC) deliberated and adopted the "Recommendations of the CPC Central Committee on the Formulation of the 14th Five-Year Plan for National Economic and Social Development and the Vision for 2035", which outlined a road map towards a modern socialist country. What will happen in the future, many of our real troubles - high house prices, expensive medical care, difficult to go to school ... How do I crack it? Today, we launch the 14th Five-Year Plan column to look at the promises of young people and look ahead to the next five, 15 years . . .---------------27-year-old Zhang Xiao is a rare disease, she suffers from mucosal polysaccharia type I, from the onset of the disease, she still maintains the height of childhood, can not complete their own hair washing, wearing socks and other movements, walking also have to be careful.At present, she faces the confusion is that even if ushered in a rare disease special effects drug approved for the domestic market, but the huge cost of medicine still let many patients can only hope that the drug sigh. What she wanted to know was, in the next 5 or 15 years, it would be difficult to see a patient with a rare disease, how to crack it.The Fifth Plenary Session of the 19th Central Committee of the Communist Party of China proposed to improve the multi-level social security system, comprehensively promote the construction of a healthy China, implement a national strategy to actively respond to the aging of the population, and strengthen and innovate social governance. The Proposal of the Central Committee of the Communist Party of China on the Formulation of the 14th Five-Year Plan for National Economic and Social Development and the Vision for 2035 (hereinafter referred to as the "Recommendations") proposes to improve the multi-level social security system in the next 5-15 years and comprehensively promote the construction of a healthy China.Looking to the future, a new round of health care reform, with the "three-doctor linkage" (i.e., health care, health care and medical reform linkage) as the fulcing point, will release more people's livelihood. The problem that has plagued everyone for a long time is expected to be truly solved.

    a more courage to persevereIt's hard, but it's more about positive change.This year, a special drug for the treatment of mucosal storage, the injection of Laroni enzyme thick solution (commodity name: Ai Zan) was approved for the market. Although the price of this special effects drug is "sky price" - to Zhang laughs the amount of medicine, the annual need for more than 300 million yuan, but Zhang xiao still feel a step closer to their goal. Ai's approval of the listing will at least allow more patients to see new hope.Recently, there are two good news: the relevant pharmaceutical companies launched a "buy two give one" discount, calculated that the price of the drug a year is more than 1 million yuan cheaper, the domestic pharmaceutical company Beihai Kangcheng recently announced the launch of the commercialization of Ado sulfatease β injection, which is China's first and only mucosal polysaccharide storage type II enzyme replacement therapy. Zhang laughs and feels another courage to stick to it.In the world, the treatment of rare patients is a difficult problem, on the one hand, the high cost of new drug development, pharmaceutical companies need to rely on the sale of drugs to recover costs, profits, so as to invest in the new drug development cycle; And "basic" health care funds are often difficult to cover such groups of people, often into a difficult choice of embarrassing situation: the protection of the majority of people's basic medication, or to protect a small number of people's life-saving medicine?For years, Zhang laughed that they had been pushing for the inclusion of special-effects drugs such as Ayres in the health-care list. But it's clear that health care funding is limited, and it's not easy to include special drugs for rare diseases. And to reduce medical costs, to solve the problem of look down on the disease, obviously not only "into the health insurance" a path, as well as drug centralized procurement negotiations, as well as social assistance and other mechanisms. In the next 5 years and 15 years, with the development of China's economy and the improvement of the medical and health insurance system, more positive changes will be ushered in.

    from 13,000 yuan to 700 yuanFrom 13,000 yuan to 700 yuan, behind the digital change is the redemption of countless lives.November 5, China's first high-value medical supplies centralized belt procurement in Tianjin Opened the bid, centralized procurement of the object is the heart coronary stent. This is a commonly used medical device in cardiac intervention surgery, which has the effect of unblocking arterial blood vessels. In China, about 1 million patients are implanted with heart stents each year, but most heart stents are imported at high prices.After centralized belt procurement, a total of 10 kinds of domestic and imported heart support products selected, the average price from about 13,000 yuan to about 700 yuan, a decline of about 93%. Patients are expected to have affordable heart stents by January next year. And this change, in recent years has also happened a lot: the approval of pharmaceutical equipment accelerated, with the volume of procurement expansion, pay-per-disease reform landing...“ In the next five years, the trend of drug separation will be strengthened, supplies, drugs in the circulation of water will continue to decline, with medical institutions and medical personnel will slowly separate from the income, they can rely on medical services to obtain reasonable remuneration. Cai Jiangnan, director of the Center for Health Management and Policy at The China Europe International Business School and founder of the Shanghai Tsingqi Institute for Healthy Development, told The China Youth Daily.   According to Cai Jiangnan, there are two outstanding manifestations of medical reform in the past five years: one is to further accelerate the approval of drugs and devices, accelerate the development of innovative drugs, generic drugs, and the other is a series of reforms such as volume procurement and drug payment methods. In the future, every ordinary people will benefit from these reforms.

    to see a doctor "system guarantee", medication has new hope   Zhang Qingzhong, a farmer in Lanping County, Yunnan Province, finally had a long-lost smile on his face when he saw her granddaughter bouncing around.   Two years ago, Zhang Qingzhong's little granddaughter was born with symptoms such as fast heart skipping and whitening of her face, and was sent to the hospital for examination to find out that the child had a congenital heart disease. But the poor family really can't get the money to operate on their children, and the hospital in the small county town can't take care of it. In times of distress, the state extended its hand to them. Zhuhai Hospital, a Chinese hospital in Guangdong Province, which is supported by its counterparts, not only treated the children free of charge, but also reimbursed the transportation expenses to and from Zhuhai.   One day in September this year, Zhang Qingzhong took his young granddaughter to Lanping County Central Hospital for a re-diagnosis. In his heart, there is a small wish: can you see the disease here in the future? After all, the opportunity for free treatment is not always there. “ The idea will come true soon. Li Chunheng, vice president of Lanping County Central Hospital, told China Youth Daily. He pointed to a new building of more than a dozen floors behind the hospital. This is the county-level hospital's new building, a total investment of more than 9 million yuan, of which the central financial support for a large part. After completion, the equipment, beds, etc. will be updated.   A new round of health care reform, with the "three-doctor link" as its fulcing point, is turning the corner for countless families who may be poor because of illness. Yan Weidong, head of the treatment and protection department of the State Health Insurance Administration, said at a press conference held by the State Administration of Health Care that at present, the "system guarantee" for poor people to see a doctor has been basically realized, and the problem of basic medical security has been basically solved.   With the landing of more medical reform measures, look down on the sick, look bad will gradually reduce the situation, a drug difficult situation will also usher in a change.


    light health care rooted, primary health care "blood" as the head of the primary county hospital, Li Chunheng's future expectations are not just from this new building. In his heart, these rooted in his hometown, the growing young health care workers, is the future of the local people's "health guardian."   After 90, the doctor and Li Sister were such guardians. Last year, the ethnic minority girl was sent to Zhuhai, Guangdong Province for further study. There, doctors at Zhuhai Hospital, a Chinese hospital in Guangdong province, who are supporting her, also learned a set of painless gastroscopy techniques. She said that before going to Zhuhai, she had only one simple idea in mind: "Learned this technology, folks in Lanping local can do the inspection." " because of the eating habits of spicy, salty reasons, Lanping County's digestive tract diseases, but for many years, no hospital in the county can do painless gastroscopy. Many patients have to travel more than 100 kilometers away from Dali to seek medical treatment, some patients because of lack of timely treatment, the disease may be delayed into a critical condition.   This year, Zhuhai City donated a set of electronic gastroenteroscopy equipment to Lanping County Central Hospital. And Limei also returned home, almost every day to more than 10 patients to do a full range of gastrointestinal examination. Even more to Li Chunheng's joy, the hospital's help in recent years is "from blood transfusion to blood-making", young health care workers gradually grew up.   The construction of primary medical institutions has always been a short board of medical and health services, and will also be the focus of future investment. According to information released by the National Development and Reform Commission in July, a total of 45.66 billion yuan of the central budget allocated by the central government to the country's health sector in 2020 will be earmarked to strengthen capacity-building in public health prevention and treatment, including comprehensively upgrading the capacity of county medical and health services, upgrading and upgrading major epidemic treatment bases, and stockpileing a certain number of treatment facilities and equipment.   In Cai Jiangnan's view, the outbreak of neo-crown pneumonia sounded the alarm of the primary health care system, the future construction of the primary health care system should focus on the upgrading of the skills of medical personnel, medical services compensation mechanism, so as to achieve real graded diagnosis and treatment, so that primary care doctors play a good role as a "health gatekeeper." In addition, he believes that with the development of digital technology, telemedicthing, Internet hospitals will also usher in rapid development in the next 5-15 years.   In recent years, "Internet Plus" has been fully linked to medical, medical, and medical services, which can be prescribed online and delivered to third parties. In November of this year, it was clear that qualified Internet medical institutions can voluntarily "sign up" to the scope of medical insurance through the physical medical institutions on which they rely, and that "Internet plus" medical insurance payments will adopt a consistent reimbursement policy online and offline. “ When these chains can be opened, primary health care can also develop. Cai Jiangnan said.
    (China Youth Daily
    )
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