The national health and Health Commission has set up the national rare disease diagnosis and treatment cooperation network office

On January 2, 2020, the National Health Commission issued a notice, deciding to establish the national rare disease diagnosis and treatment cooperation network office relying on the national level leading Hospital Beijing Union Hospital Health and health committees of all provinces, autonomous regions, municipalities directly under the central government and Xinjiang production and Construction Corps: In order to strengthen the organization and management of the national rare disease diagnosis and treatment cooperation network (hereinafter referred to as the cooperation network), establish a smooth and perfect cooperation mechanism, and give full play to the overall role of the cooperation network, our committee decided to establish the national rare disease diagnosis and treatment cooperation network office relying on the national level leading Hospital Beijing Union Hospital of the cooperation network The office is mainly responsible for the daily contact and management of the member hospitals of the cooperation network See the attachment for the list of office personnel Please cooperate in relevant work Office Tel.: 010-69154259 Annex: list of office staff of national rare disease diagnosis and treatment cooperation network annex of General Office of national health and Health Commission on January 2, 2020 (new information disclosure: active disclosure) list of office of national rare disease diagnosis and treatment cooperation network director: Zhang Zongjiu, deputy director of the director of the medical administration bureau of the national health and Health Commission: Zhang lyric, Secretary of the Party committee and vice president of Beijing Union Medical College Hospital, Jiao Yahui, deputy director of the medical administration bureau of the national health and Health Commission, Li Linkang, executive director of the China rare diseases Alliance: Li Dachuan; Zhang Wenbao, director of the medical management division of the medical administration bureau of the national health and Health Commission; Wang Manli, deputy director of the medical management division of the medical administration bureau of the national health and Health Commission; pan Hui, grade 4 investigator of the medical management division of the Medical Administration Bureau of the national health and Health Commission; pan Hui, director of the medical department of Peking Union Medical College Hospital Zhu Weiguo, director of information management department of Beijing Union Medical College Hospital Zhou Jiong, assistant to director of Medical Department of Beijing Union Medical College Hospital Zhang Dingding, Mengmeng, medical science research center of Beijing Union Medical College Hospital Statement: this opinion only represents the author, not the position of yaozhi.com, welcome to exchange and supplement in the message area; if you need to reprint, please be sure to indicate the author and source of the article.