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The National Rare Disease Catalogue Impact Assessment Report Conference and 2022 National Rare Disease Diagnosis and Protection Seminar will be held on February 28 from 13:30-18:00
.
This conference is co-hosted by the Kod Center for Rare Diseases and the Health Knowledge Bureau, and Mace Medical will be invited to participate in this conference
The National Rare Disease Catalogue Impact Assessment Report Release Conference and 2022 National Rare Disease Diagnosis and Protection Seminar will be held at 13:30-18:00 on February 28th.
On the same day, Mr.
Huang Rufang, the founder of Koide Rare Disease Center, will join 12 scientists and entrepreneurs to jointly launch the Zhejiang Ruiou Public Welfare Foundation .
Dr.
At that time, you can scan the code to enter the live room and watch the meeting .
Long press to identify the QR code to watch the live broadcast
Long press to identify the QR code to watch the live broadcast Long press to identify the QR code to watch the live broadcast(Meeting time: 13:30-18:00 on February 28)
(Meeting time: February 28, 13:30-18:00) (Meeting time: February 28, 13:30-18:00)Conference Sneak Peek
Sneak peek of the meeting Sneak peek of the meetingPart 1 Press Conference & Seminar on the Impact Assessment Report of the First National Rare Disease List
Part1 Release Conference & Seminar on Impact Assessment Report of the First National Rare Disease Catalogue Part1 Release Conference & SeminarAt the meeting, the organizer will make a speech on the research report, and invite relevant guests to give speeches on the main report.
At the end, they will also talk about the roundtable "2022 National Rare Disease Diagnosis and Protection Seminar" to discuss topics related to rare disease diagnosis and treatment with people from all walks of life in the industry.
, and actively promote the development of rare disease basic scientific research and translational medicine in China
.
May rare disease patients receive effective treatment and recover soon
At the meeting, the organizer will make a speech on the research report, and invite relevant guests to give speeches on the main report.
Part2 The first "Snail Run" Rare Disease Charity Run Project Launched Part2 The First "Snail Run" Rare Disease Charity Run Project Launched
The snail, with its heavy shell on its back, crawls slowly, but keeps moving forward
.
Rare disease patients and their families are like snails, carrying heavy mental and financial pressures and moving forward in the darkness that no one can see
The snail, with its heavy shell on its back, crawls slowly, but keeps moving forward
"In the next decade, we will gather a group of passionate entrepreneurs and scientists to truly promote the basic scientific research and translational medicine of rare diseases in China
At this meeting, Huang Rufang will join 12 scientists and entrepreneurs to jointly launch the Zhejiang Ruiou Public Welfare Foundation.
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